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稀有学者计划

The RARE Scholars program is an annual scholarship opportunity for people living with a rare genetic condition, 包括软骨发育不全, 板条疾病, A型血友病, mucopolysaccharidosis (MPS) or phenylketonuria (PKU). These scholarships recognize and support students who have demonstrated exceptional leadership and engagement in school and community activities.

The application period for the 2024-25 academic year is now closed. Applications for the 2025-26 academic year will be accepted beginning in early 2025.

Get to Know Our 2024-25 Scholarship Recipients

博彩平台网址大全 RARE Scholar Allison Lowrie

Allison Lowrie 德克萨斯州的一个&米大学

Allison is studying Animal 科学 and expects to graduate in 2028. Despite her complicated relationship with protein as someone living with phenylketonuria, Allison plans to pursue a career in meat sciences. “What sparked the interest was taking part in Future Farmers of America through high school,她说。. “I met some great people there who were in the industry doing inspection or lab research, and I got to do a lot of behind-the-scenes things, dive deep into the actual career and do some internships.”

博彩平台网址大全 RARE Scholar 阿利森·陈

阿利森·陈 西方的大学

阿廖沙 is attending 西方的大学 in Los Angeles, where she’s studying sociology and politics, 并计划于2028年毕业. 着眼于未来, 阿廖沙, who is living with mucopolysaccharidosis IVA, is already outlining her next academic challenge. “I really hope that in five years I’m in law school, 在我成为律师的路上,艾莉森说. “I’ve thought about focusing on intellectual property, or possibly family law.”

生物arin稀有学者布莱恩·杜瓦

布莱恩·杜瓦 范德比尔特大学

布莱恩, who is pursuing a Master of Public Health from Vanderbilt, acknowledges that growing up with A型血友病 has shaped his educational and career paths. “I know that the hemophilia community needs leaders,布莱恩说。, who expects to complete his studies in 2026. “My goal is to have a role where I have influence over things that directly impact my health and the health of people I know. I feel a great deal of personal responsibility.”

生物arin RARE学者闫佳怡

益严 University of Minnestoa College of Pharmacy

Jiayi plans to graduate as a Doctor of Pharmacy in the Spring of 2026 and says that growing up with achondroplasia has helped shaped his studies, 以及他未来的目标. “I just really want to dedicate myself to this field,” Jiayi says. “我想倡导, share my voice and share my experience to make myself heard, and make sure other people are heard as well.”

问麦克林托克将 华盛顿大学

将, a sophomore at the 华盛顿大学 and a two-time RARE Scholars award recipient, is working on a double major in computer science and statistics. He’s also giving back to the phenylketonuria community. “今年夏天, I started volunteering at the Institute on Human 发展 and Disability (IHDD) at the 华盛顿大学,威尔说, who was an IHDD client as a child. “The people there have known me my entire life. They took my blood samples when I was 2 years old, and I’ve been working with the IHDD to get lancet donations for blood draws for other children and families with PKU.”

In a way, a program like this makes me feel seen. There still isn’t that much awareness of genetic conditions, so for 博彩平台网址大全 to support our community in other ways beyond providing treatment is awesome and inspires me to do more.

– Sarah Cook, 2023-24 Scholarship Recipient

奖学金的要求

An annual scholarship opportunity for people living with a genetic condition for those who have demonstrated exceptional leadership and engagement in school and community activities.

The RARE Scholars program will award up to $25,000 in scholarships to eligible students.

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